We huddled around and watched intently as Dustin, Ian’s extraordinary hospice nurse, disconnected the tube that snaked out of the port in Ian’s chest. With clean, gloved hands, he meticulously wiped both ends with antiseptic wipes.
“Next, insert the needle into the vial to draw out the dose of Dex into the syringe,” Dustin instructed and demonstrated in a deliberate and patient manner. “Then point the needle up and push gently to remove any air.”
This was the most important crash course we would ever take in our lives. Dave, Zach, Lei and I were suddenly intimately involved in not only loving and supporting Ian, but trying to sustain his very life. Now, together with hospice nurses who visited daily, WE were Ian’s new medical team.
Ian’s surgically installed port, once used for the administration of chemotherapy, was now called into duty for other purposes. A split line delivered self-administered pain medications through one side, while the other side was available for ongoing daily doses of Dexamethasone, an anti-inflammatory medication prescribed to help keep swelling down in his central nervous system. It was our job to administer Dex intravenously four times a day.
But, Dexamethasone soon became a dirty little word.
Among its many harsh side effects was insomnia. Ian knew that if his body had any chance of fighting, rest was critical. Determined to control what he could with his now precarious, precious life, Ian determined to forsake western medicine that unfortunately failed to eradicate the cancer. He requested that the doctors wean him off of Dex and all pain meds.
Ian had made up his mind. He would keep fighting, but he would do what felt right to him now … no matter the outcome.
Continue reading “Forever 23”