One year ago today, on August 5, 2016, (Friday) Lei and I hoisted Ian into my car and drove him to the nearby clinic. His health was deteriorating rapidly. It was an unexpected turn of events after receiving glowing evaluations just two months prior, following three months of chemo and radiation.
However this week, Ian suffered a severe headache, he could barely eat and his legs grew weaker and weaker by the moment. He clutched Lei’s shoulders and coerced each wobbly step out of his reluctant legs. While at the clinic, Ian suddenly lost his ability to speak for a few minutes.
Something was very, very wrong.
Continue reading “What Else Can We Do?”
Dave was walking a bit ahead of me as Rosie pulled him quickly towards the park she enjoyed so much. He was a good 20 to 30 feet ahead, and this provided an opportunity for the emotions that were simmering inside me to explode like a mishandled pressure cooker.
“Why, Lord? Why Ian?” I cried out. Questions I asked often in those very early days.
“Lord help me,” I cried out audibly, but not loud enough for Dave to hear. I wiped away tears that surged and receded violently like tsunami waves.
Rosie stopped to sniff around and soon we were walking as a group again. I’m sure Dave didn’t notice my sad condition because happiness was altogether elusive back then.
We reached the center of the large open field as my thoughts swirled. I had a severe ache inside my soul. I missed our boy so much I thought I might die. As tears began to well up in my eyes again, I diverted them towards the ground hoping to spare Dave the trauma.
When I looked down, at my feet was a little yellow flower. I plucked it from the earth. This was not just any little yellow flower.
Continue reading “Our Little Yellow Flower”
The voice over the car radio promotes a Champagne Brunch. The word Champagne sticks. And, it festers. Champagne. Champagne. Champagne Ponds…on the Big Island. Where we took turns swimming to literally keep our sanity while you lay nearby in bed at the naturopathic treatment center – fighting for your life. Fighting for the chance to one day swim in the Champagne Ponds. Our salty tears forever mixed into the Champagne Pond.
Champagne Brunch. I change the channel on the car radio.
I walk by the television and hear World Surf League commentators analyzing the pro-surfers in the line-up. I didn’t even know the contest was “on”. Our lives once revolved around WSL events – like other families’ lives might revolve around baseball or football. And, when John John hit the line-up, it was time to stop the presses. Drop what you’re doing. An adrenaline rush for JJ’s #1 fan. You paced the living room floor and yelled at the TV if the judges didn’t get it right.
I hear the WSL commentators, but I have to keep walking.
I run into the store. Just looking for one thing. A quick in and out. There she is struggling with the zipper on a piece of luggage. Two young sons hover nearby. Actually, they hover right over her. Perhaps trying to be helpful. Perhaps not. She’s engrossed with the suitcase. The boys are being mischievous. Just little boy stuff. She’s oblivious to their wonderful presence. Just caught up in her task. I wish she’d notice how adorable they are. How wonderful. How precious. She continues to struggle with the zipper.
I turn my gaze away from the woman I don’t know; the woman I can’t stop thinking about for hours.
Continue reading “Grief Stalks Me”
The Gift of Lorna and Keene
Ian had been diagnosed with a rare cancer a few months before I got a text from my old college friend, Lorna. We had also worked together for several years at the phone company but had lost touch for many years – decades, actually. A mutual friend, however, had heard that Ian was undergoing chemo and radiation treatment and suggested that Lorna contact me since her son, Keene, had recently battled cancer as well.
It was truly good to hear from Lorna after so many years. We texted back and forth, but when I realized that Keene didn’t win his battle, my heart dropped and it broke. Cautiously, I asked Lorna what kind of cancer her son had. A rare cancer she told me: rhabdomyosarcoma.
That’s what our son had.
I then asked which of the two types of rhabdo – embryonal or alveolar? Lorna said it was alveolar, which is the deadlier of the two.
That’s what our son had.
Continue reading “Old and New Friends”
One year ago today, we got the best news possible. The doctors said that Ian’s first evaluations were “remarkable.” The cancer cells were no longer visible on the MRI. It felt like a miracle, and words can’t express how overjoyed we were with the news. I can remember Ian’s large, slow-motion fist pump when we got the news over the speaker of my cell phone! The doc advised that he’d have to continue the 10-month chemo treatment plan to be sure we killed every last cell of the aggressive cancer.
While our prayers were not answered the way we wanted them to be last year, I remind myself this morning that our prayers were likely answered about a dozen years before that…
Below is a post that I made on my personal Facebook page a few months ago (before I started this blog) where I shared about the gift of time that I believe Ian was given.
This post and many of my early FB posts were written directly to Ian…
This is one of my favorite pictures of you. It’s just so … you! You were on a Big Island trip with your classmates – maybe in the 5th or 6th grade. Your extra-large looking forearm makes me think of that funny episode of the King of Queens where Doug and Carrie get that portrait and Carrie’s arm looks enormous and Doug has rabbit-sized front teeth. That was one of your favorite episodes of that sitcom. You would laugh and laugh and laugh, nearly jolting out of your seat.
You had a very sweet childhood filled with lots of laughter. But, at around the age of 10 or 11 we had a quite a scare when a quickly growing lump on the front of your right thigh appeared out of nowhere. It doubled in size in about a month and the doctor decided to have it removed, although he expressed no serious concerns about it initially.
Continue reading “Thankful for the years…”
I know we’re not supposed to “compare” grief and rank them. I know that.
Yet, as I consider the depth of my broken heart, my mind sometimes does exactly that before I can stop it. And, when I believe someone else’s loss could possibly be even greater than my own, I wonder how can they bear it?
In my own life, there is someone whose grief, I believe – in many ways – could outrank mine.
It’s the beautiful, strong, and vibrant love of Ian’s life and fiancé, Lei.
Yes, I am Ian’s momma and it’s easy for me to believe that no one (besides God) could love him more than I do. But, the truth is, if there was such a thing as a loss-meter, I think Lei’s grief would easily measure up to mine (if not surpass it) because her loss comes at such a young age.
Yet, in the months that have passed, I’ve watched Lei handle her grief with strength, grace and wisdom beyond her years.
Continue reading “The Gift of Lei”
When Dr. Vassalli told us that malignant tumor cells were found in the biopsied lymph node of Ian’s neck, it seemed that all the world should have stopped at that moment and taken notice. But, it did not.
For our family, life was in slow motion for about half a day as we processed the impossibly bad news. Then, just as suddenly as we were given the life-changing information, we were thrust into a whirlwind of appointments, conversations, and decisions.
Within a few days, we found ourselves shuffling through notes written on bits of paper, within the margins of books, on the back of brochures, and on our electronic notepads. It quickly became an overwhelming task to keep track of who was who and what came next.
To keep our sanity, I grabbed a yellow college-ruled notebook that was in my desk drawer and added tabs to segment the pages into sections for “Notes,” “To Do’s,” and “Appointments.” I consolidated all our notes and talked to Ian about the new plan of attack. We agreed that anytime he or I would speak with a doctor, nurse, insurance representative, disability coordinator, or any of the myriad of others now in our life, we would add notes to the notebook.
Continue reading “The Yellow Notebook”