The Greatest Loss #Goodbye Alfie

If anyone had told us that we could NOT take Ian out of the hospital to bring him home or take him for intensive naturopathic treatment…well, I just can’t even fathom what measures we would have taken to keep our “hope” alive. The doctors had given up on our 23-year-old son Ian just as they had given up on Alfie. But, are they God? Are they his parents, fiancé, brother, grandma, grandpa, aunty, uncle, cousin or best friend? Whether a hospital/doctor/government ends up being right or wrong, it doesn’t matter. It’s NOT their place to make that call…it’s just not.

We were blessed to have doctors that supported our decisions, even when they did not agree with some of them. They thought it was too risky to fly Ian to the Big Island for intensive naturopathic treatment and determined it would be fruitless. But, Ian’s mind was strong. He WANTED to go. He was not ready to give up. As his family, we would have moved mountains to give him every last fighting chance. What did we have to lose?

What did Alfie have to lose?

I will never see those two weeks spent on the Big Island giving Ian his “Hail Mary” as a waste of time. NEVER. In fact, given the circumstances, it was the best of times.

What was the alternative? Think about it.

We have lost so much.  But, Ian died with dignity…making choices as HE saw fit through the end of his life. This was OUR FAMILY.

No one had the right to tell us when to “give up”.

My heart is shattered for these parents.

#GoodbyeAlfie #PrayersForTheFamily

#GratefultobeAmerican

The Hedge

I feared the hedge would die.

One day, in the middle of the chaos, I dared to dream that the hedge would make it.

I imagined how we would later tell the story of the dying hedge in our front yard as a metaphor of how you faced down your near-death experience with cancer, but you came back with vigor to live out the rest of your days with renewed focus and perspective.

We would explain how the dry branches appeared beyond resuscitation. It was that pesky, destructive white fly that snuck in under the radar and spread relentlessly beneath the abundant beautiful green leaves and orange hibiscus blossoms. Continue reading “The Hedge”

#18 Months

Is it strange that I count the months you’ve been gone in the same way that parents count the months of an infant child’s life?  Each month, as time slips by, I can’t believe we’ve made it this far without you here.

Yet, if the pattern holds true, I’ll stop counting the months soon.  Just a few more months and we will likely start referencing your absence in years — should anyone ask how long it’s been.

No matter how or if I express the breadth of your absence on any given day, I always know exactly how long it’s been …

because losing a child is nothing like having a child.

To watch your child grow is the ultimate privilege. Fully in awe of the miracle, you instinctively know that he or she is a gift and you celebrate the milestones, month by month, and then year after year.

When there is life, this formula is sustainable.  It propels you forward.

When there is death, this formula is difficult to sustain.

For 18 months, I have quite literally been walking with my head turned in the opposite direction … looking backwards.

If I continue this formula, I fear it will sink me.

So, where do I go from here?

Continue reading “#18 Months”

Of Butterflies, Black Moths and Angels

I sat with Joy on the back patio on a sunny afternoon in May 2017 as we talked endlessly about our sons. Her son, Kekoa, passed over to heaven in July, while our son Ian passed in October.

We had met each other only weeks prior at Griefshare, a grief support group we attended at a nearby church. Joy is a deeply spiritual woman with a solid footing in her faith. We grieved together with hope, knowing that our sons are now among the Lord’s saints in heaven.

Nonetheless … there were tears and pain.

When two butterflies suddenly started to dance on and around our hedges that afternoon, we chuckled about it. It was tempting to say these two dancing butterflies were our sons visiting us, but we knew better than that. Our children did not turn into butterflies, black moths or angels. They are still the magnificent souls they were here on earth but in a new and improved physical state in heaven.

Yet, as these two butterflies brought smiles to our faces long into the afternoon, Joy suddenly asked, “Do you see two butterflies hanging around like this very often?”

“Not really,” I replied.

We stared at those butterflies in silence for a bit of time, and then we laughed.

It felt good to laugh.

Something felt very special about those butterflies.

Continue reading “Of Butterflies, Black Moths and Angels”

A Smile to Remember

The hospital bed in the middle of our living room was surrounded by sofas that served as seating for those who came to say goodbye. Hospice workers came and went, addressing Ian’s “comfort” needs that changed drastically with each passing day.

Pastor Glenn arrived on Monday to pray with us, again. This time, he gently told Ian that while we continue to pray for a miracle, it was time to consider that God was preparing a place for him.

But, Ian was not ready…

Even Jesus asked God to “let this cup pass from me” before going to the cross.

Pastor Glenn later reassured us that even if Ian wasn’t ready to leave, God had him – his child – by the hand and would not let go.

Six days after returning home from our Hail Mary attempt at the naturopathic treatment center, the good Lord dispatched his Angels for our precious Ian.

Continue reading “A Smile to Remember”

What Else Can We Do?

One year ago today, on August 5, 2016, (Friday) Lei and I hoisted Ian into my car and drove him to the nearby clinic. His health was deteriorating rapidly. It was an unexpected turn of events after receiving glowing evaluations just two months prior, following three months of chemo and radiation.

However this week, Ian suffered a severe headache, he could barely eat and his legs grew weaker and weaker by the moment. He clutched Lei’s shoulders and coerced each wobbly step out of his reluctant legs. While at the clinic, Ian suddenly lost his ability to speak for a few minutes.

Something was very, very wrong.

Continue reading “What Else Can We Do?”

Our Little Yellow Flower

Dave was walking a bit ahead of me as Rosie pulled him quickly towards the park she enjoyed so much. He was a good 20 to 30 feet ahead, and this provided an opportunity for the emotions that were simmering inside me to explode like a mishandled pressure cooker.

“Why, Lord? Why Ian?” I cried out. Questions I asked often in those very early days.

“Lord help me,” I cried out audibly, but not loud enough for Dave to hear. I wiped away tears that surged and receded violently like tsunami waves.

Rosie stopped to sniff around and soon we were walking as a group again. I’m sure Dave didn’t notice my sad condition because happiness was altogether elusive back then.

We reached the center of the large open field as my thoughts swirled. I had a severe ache inside my soul. I missed our boy so much I thought I might die. As tears began to well up in my eyes again, I diverted them towards the ground hoping to spare Dave the trauma.

When I looked down, at my feet was a little yellow flower. I plucked it from the earth. This was not just any little yellow flower.

Continue reading “Our Little Yellow Flower”