If anyone had told us that we could NOT take Ian out of the hospital to bring him home or take him for intensive naturopathic treatment…well, I just can’t even fathom what measures we would have taken to keep our “hope” alive. The doctors had given up on our 23-year-old son Ian just as they had given up on Alfie. But, are they God? Are they his parents, fiancé, brother, grandma, grandpa, aunty, uncle, cousin or best friend? Whether a hospital/doctor/government ends up being right or wrong, it doesn’t matter. It’s NOT their place to make that call…it’s just not.
We were blessed to have doctors that supported our decisions, even when they did not agree with some of them. They thought it was too risky to fly Ian to the Big Island for intensive naturopathic treatment and determined it would be fruitless. But, Ian’s mind was strong. He WANTED to go. He was not ready to give up. As his family, we would have moved mountains to give him every last fighting chance. What did we have to lose?
What did Alfie have to lose?
I will never see those two weeks spent on the Big Island giving Ian his “Hail Mary” as a waste of time. NEVER. In fact, given the circumstances, it was the best of times.
What was the alternative? Think about it.
We have lost so much. But, Ian died with dignity…making choices as HE saw fit through the end of his life. This was OUR FAMILY.
No one had the right to tell us when to “give up”.
My heart is shattered for these parents.